Parkinson's Concierge

Person with Parkinson’s & partner & carer for Russ, diagnosed in 2004 company director and co-founder, volunteer.

I have particular interests, skills and experience in the areas listed below:

• Team Work & Leadership
• Sitting on Panels for Patient Engagement and Research
• Negotiating deals for People with Parkinson’s
• Business Development – establishing Corporate Partnerships
• Creating Awareness and media appearances
• Relationship Management – with key decision makers and policy makers
• Back to work – Keen to assist those with Parkinson’s to find work again, by identifying their skills and seeking funding to cross train them
• Identifying new opportunities in order to develop a new business model
• Developing ideas to improve the Quality of Life of all those affected by Parkinson’s
• Promoter of Patient Centric Healthcare, and Diversity
• Award winner for Patient Centricity awarded by European Society for Patient Centred Healthcare 2020

Person with Parkinson’s & partner & carer for Charlotte, diagnosed in 2012 co-founder, volunteer.

His skills are to negotiate deals to benefit the lives of people living with Parkinson’s, their families and carers

• Public speaking to large audiences
• Involvement in more than 15 Research Trials.
• Sitting on University Hospital Research Panels
• Recognising those PWP who need support and are vulnerable
• Implementing a Partner “Buddying” system for newly diagnosed
• Developing relationships & engaging with professionals
• Speaking out for PWP and campaigning for inclusion not exclusion
• Ensuring no decisions about us are created without us.
• Webinar Mediator, Virtual Social Activities specialist
• Promoter of Patient Centric Healthcare, and Diversity
• Award winner for Patient Centricity awarded by European Society for Patient Centred Healthcare 2020

Helping others not to experience my journey with Parkinson’s – by engaging with professional bodies and other PWP who have experienced similar hurdles.

Person with Parkinson’s, husband to Helen, diagnosed in 2017 project manager volunteer.

He is a motivational speaker, inspirer, and a spreader of positivity.
Richard works tirelessly to improve the Quality of life of people living with Parkinson’s. He is a passionate advocate for the Parkinson’s community always challenging the norm for the benefit of all.

A Speaker for Parkinson’s UK, appeared on BBC Television, That’s TV Hampshire and Radio Berkshire. Active member of the Basingstoke UK Parkinson’s Support Group. Passionate advocate for the Parkinson’s

• Key Note speaker at the World Neourology Conference in Rome October 2019.
• Part of the organising committee of the 1^st YOPD World Conference ‘PDvision 2020’.
• Promoter of Patient Centric Healthcare, and Diversity

Wife & carer for Richard The Social Media Manager, volunteer. For Parkinson’s Concierge

Helen keeps us all grounded, is a pillar to us all. She ensures the company is running smoothly by keeping track of all diaries of events, promotions, timetables, blog articles. She is involved in research as a carer and sits on the Research Panel of Southampton & Northumbria Universities. Campaigning on behalf Carers and Families of People with Parkinson’s.
Devoting her life to helping others come to terms with their diagnosis, improving Patient Centred Healthcare.  Campaigning & eradicating the “Post Code Lottery” system which has arisen over the years. She is also Passionate about creating a Global Parkinson’s Community to provide support for Carers.

Mission statement

• Creating global awareness of Parkinson’s,
• Raising awareness around Parkinson’s treatments
• Mental health issues
• Creating a global Parkinson’s community – offering a virtual “world of Parkinson’s”
• Promoting” stages” our life story a 25-minute short film
• Developing partnerships and relationships with the corporate sector & policy makers & game changers
• Introducing Parkinson’s Concierge roadshows –virtual conferences, webinars, and go live sessions
• Campaigning for better customer experience with DWP, insurers, retailers, & travel networks
• Showcasing & sharing our life experiences – through educational videos with DBS & pharma, & neuro technology
• Promoting exercise, wellbeing, and diet to help manage the condition
• Discounted holiday retreats for people with Parkinson’s and their carers.

Tools

ReMeLife – join free our global community – welcome to a “virtual world of Parkinson’s”