Mission statement
- Creating global awareness of Parkinson’s
- Raising awareness around Parkinson’s treatments
- Mental health issues
- Creating a global Parkinson’s community – offering a virtual
“world of Parkinson’s” - Promoting “STAGES” – our life story – a 25 min short film
- Developing partnerships and relationships with the
corporate and business sector, policy makers & game changers.
What do we do
People with Parkinson’s& Carers for each other.
Action takers,& public speakers.
Advocating for a numberof Parkinson’s organisations.
OUR BOOK RECOMMENDATIONS
join our community
We welcome partners and investors to join us on our journey – these organisations must believe in us, our idea, and want to help us make a difference, improve our quality of life, increase awareness of what its like to live with Parkinson’s, and help us achieve what we can do to change things.
join our community
We welcome partners and investors to join us on our journey – these organizations must believe in us…
OUR BOOK RECOMMENDATIONS
Promoting Awareness
of Parkinson’s
NHS & to GP’s, retailers, holiday companies, airports, rail networks, supermarket chains, schools, colleges, universities, care homes, sports grounds, hospitals and more……
To create an understanding of the problems people with Parkinson’s and people affected with Parkinson’s face daily and the things that healthy people would not know about and take for granted.
write to us
our PARTNERS
Our Team
Charlotte Allen
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Russ Bradford
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Charlotte Allen
I have particular interests, skills and experience in the areas listed below:
- Team Work & Leadership
- Sitting on Panels for Patient Engagement and Research
- Negotiating deals for People with Parkinson’s
- Business Development – establishing Corporate Partnerships
- Creating Awareness and media appearances
- Relationship Management – with key decision makers and policy makers
- Back to work – Keen to assist those with Parkinson’s to find work again, by identifying their skills and seeking funding to cross train them
- Identifying new opportunities in order to develop a new business model
- Developing ideas to improve the Quality of Life of all those affected by Parkinson’s
- Promoter of Patient Centric Healthcare, and Diversity
- Award winner for Patient Centricity awarded by European Society for Patient Centred Healthcare 2020
Russ Bradford
Person with Parkinson’s & partner & carer for Charlotte, diagnosed in 2012 co-founder, volunteer.
His skills are to negotiate deals to benefit the lives of people living with Parkinson’s, their families and carers
- Public speaking to large audiences
- Involvement in more than 15 Research Trials.
- Sitting on University Hospital Research Panels
- Recognising those PWP who need support and are vulnerable
- Implementing a Partner “Buddying” system for newly diagnosed
- Developing relationships & engaging with professionals
- Speaking out for PWP and campaigning for inclusion not exclusion
- Ensuring no decisions about us are created without us.
- Webinar Mediator, Virtual Social Activities specialist
- Promoter of Patient Centric Healthcare, and Diversity
- Award winner for Patient Centricity awarded by European Society for Patient Centred Healthcare 2020
Helping others not to experience my journey with Parkinson’s – by engaging with professional bodies and other PWP who have experienced similar hurdles.
Richard underwood
Person with Parkinson’s, husband to Helen, diagnosed in 2017 project manager volunteer.
He is a motivational speaker, inspirer, and a spreader of positivity.
Richard works tirelessly to improve the Quality of life of people living with Parkinson’s. He is a passionate advocate for the Parkinson’s community always challenging the norm for the benefit of all.
A Speaker for Parkinson’s UK, appeared on BBC Television, That’s TV Hampshire and Radio Berkshire. Active member of the Basingstoke UK Parkinson’s Support Group. Passionate advocate for the Parkinson’s
- Key Note speaker at the World Neourology Conference in Rome October 2019.
- Part of the organising committee of the 1st YOPD World Conference ‘PDvision 2020’.
- Promoter of Patient Centric Healthcare, and Diversity
Helen underwood
Wife & carer for Richard The Social Media Manager, volunteer. For Parkinson’s Concierge
Helen keeps us all grounded, is a pillar to us all. She ensures the company is running smoothly by keeping track of all diaries of events, promotions, timetables, blog articles. She is involved in research as a carer and sits on the Research Panel of Southampton & Northumbria Universities. Campaigning on behalf Carers and Families of People with Parkinson’s.
Devoting her life to helping others come to terms with their diagnosis, improving Patient Centred Healthcare. Campaigning & eradicating the “Post Code Lottery” system which has arisen over the years. She is also Passionate about creating a Global Parkinson’s Community to provide support for Carers.
Mission statement
- Creating global awareness of Parkinson’s,
- Raising awareness around Parkinson’s treatments
- Mental health issues
- Creating a global Parkinson’s community – offering a virtual “world of Parkinson’s”
- Promoting” stages” our life story a 25-minute short film
- Developing partnerships and relationships with the corporate sector & policy makers & game changers
- Introducing Parkinson’s Concierge roadshows –virtual conferences, webinars, and go live sessions
- Campaigning for better customer experience with DWP, insurers, retailers, & travel networks
- Showcasing & sharing our life experiences – through educational videos with DBS & pharma, & neuro technology
- Promoting exercise, wellbeing, and diet to help manage the condition
- Discounted holiday retreats for people with Parkinson’s and their carers.
Tools
ReMeLife – join free our global community – welcome to a “virtual world of Parkinson’s”
