Our Story

We are passionate about improving the lives of People with Parkinson’s and have many connections with the Parkinson’s Community in the UK and Worldwide. We are a couple with Young Onset Parkinson’s. In 2019 we made a film about our story. We hope it gives hope that there is life following a Parkinson’s Disease diagnosis. Find out more here.  We have also been contestants on Come Dine with Me!

Charlotte Allen

Charlotte Allen

Director

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Russ Bradford

Russ Bradford

Director

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Michael Quaglia

Michael Quaglia

United States Advocate

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About Parkinson’s Concierge

Parkinson’s Concierge is a global virtual world of Parkinson’s, being the “go to place” for everything Parkinson’s. Offering a virtual health and wellbeing platform with a timetable of activities, what’s on, Parkinson’s magazine, supplying links and signposting people with Parkinson’s to the best place to get the support and advice they need. We are real people with Parkinson’s who live together and care for each other.

‘ WE LISTEN, WE CARE, WE MAKE A DIFFERENCE – TOGETHER

Our 3 Key Objectives

Creating
awareness
Building a global community
where people affected by
Parkinson’s can meet and
interact, and make friendships
Improving the quality of life
of those affected by Parkinson’s

Charlotte Allen

Person with Parkinson’s & partner & carer for Russ, diagnosed in 2004 company director and co-founder, volunteer.

I have particular interests, skills and experience in the areas listed below:

  • Team Work & Leadership
  • Sitting on Panels for Patient Engagement and Research
  • Negotiating deals for People with Parkinson’s
  • Business Development – establishing Corporate Partnerships
  • Creating Awareness and media appearances
  • Relationship Management – with key decision makers and policy makers
  • Back to work - Keen to assist those with Parkinson’s to find work again, by identifying their skills and seeking funding to cross train them
  • Identifying new opportunities in order to develop a new business model
  • Developing ideas to improve the Quality of Life of all those affected by Parkinson’s
  • Promoter of Patient Centric Healthcare, and Diversity
  • Award winner for Patient Centricity awarded by European Society for Patient Centred Healthcare 2020

Russ Bradford

Person with Parkinson’s & partner & carer for Charlotte, diagnosed in 2012 co-founder, volunteer.

His skills are to negotiate deals to benefit the lives of people living with Parkinson’s, their families and carers

  • Public speaking to large audiences
  • Involvement in more than 15 Research Trials.
  • Sitting on University Hospital Research Panels
  • Recognising those PWP who need support and are vulnerable
  • Implementing a Partner “Buddying” system for newly diagnosed
  • Developing relationships & engaging with professionals
  • Speaking out for PWP and campaigning for inclusion not exclusion
  • Ensuring no decisions about us are created without us.
  • Webinar Mediator, Virtual Social Activities specialist
  • Promoter of Patient Centric Healthcare, and Diversity
  • Award winner for Patient Centricity awarded by European Society for Patient Centred Healthcare 2020

Helping others not to experience my journey with Parkinson’s – by engaging with professional bodies and other PWP who have experienced similar hurdles.

Michael Quaglia

Person with Parkinson’s, husband to Helen, diagnosed in 2017 project manager volunteer.

He is a motivational speaker, inspirer, and a spreader of positivity.
Richard works tirelessly to improve the Quality of life of people living with Parkinson’s. He is a passionate advocate for the Parkinson’s community always challenging the norm for the benefit of all.

A Speaker for Parkinson’s UK, appeared on BBC Television, That’s TV Hampshire and Radio Berkshire. Active member of the Basingstoke UK Parkinson’s Support Group. Passionate advocate for the Parkinson’s

  • Key Note speaker at the World Neourology Conference in Rome October 2019.
  • Part of the organising committee of the 1st YOPD World Conference ‘PDvision 2020’.
  • Promoter of Patient Centric Healthcare, and Diversity

Helen underwood

Wife & carer for Richard The Social Media Manager, volunteer. For Parkinson’s Concierge

Helen keeps us all grounded, is a pillar to us all. She ensures the company is running smoothly by keeping track of all diaries of events, promotions, timetables, blog articles. She is involved in research as a carer and sits on the Research Panel of Southampton & Northumbria Universities. Campaigning on behalf Carers and Families of People with Parkinson’s.
Devoting her life to helping others come to terms with their diagnosis, improving Patient Centred Healthcare.  Campaigning & eradicating the “Post Code Lottery” system which has arisen over the years. She is also Passionate about creating a Global Parkinson’s Community to provide support for Carers.

Mission statement

  • Creating global awareness of Parkinson’s,
  • Raising awareness around Parkinson’s treatments
  • Mental health issues
  • Creating a global Parkinson’s community – offering a virtual “world of Parkinson’s”
  • Promoting” stages” our life story a 25-minute short film
  • Developing partnerships and relationships with the corporate sector & policy makers & game changers
  • Introducing Parkinson’s Concierge roadshows –virtual conferences, webinars, and go live sessions
  • Campaigning for better customer experience with DWP, insurers, retailers, & travel networks
  • Showcasing & sharing our life experiences – through educational videos with DBS & pharma, & neuro technology
  • Promoting exercise, wellbeing, and diet to help manage the condition
  • Discounted holiday retreats for people with Parkinson’s and their carers.

Tools

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ReMeLife - join free our global community - welcome to a "virtual world of Parkinson’s"

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